RA Blog Week topic du jour is Exercise! The answer for me is a mix of physical and mental exercise. As I’m fond of saying, there’s no right answer, and there’s no wrong answer for each of us. When stricken with autoimmune arthritis, it’s easy to go into protective mode. Don’t move that joint, use […]More
Hello! Walk with me as I wander the wild and the bygone, and define eclectic design that is curated, not decorated. I am determined to nurture a beautiful life instead of letting Rheumatoid Arthritis, Ehlers-Danlos Syndrome, Salicylate Sensitivity, and Mast Cell Activation Syndrome define my world.
Several decades in, I thought I had life figured out. Rheumatoid Arthritis has a way of screeeching perceptions to a halt, like a phonograph needle dragged across a vinyl record. A great master of wisdom (and tomfoolery), RA has taught me 5 things: Patience: The greatest lesson of Rheumatoid Arthritis is patience. You must be […]More
Here I am, mid-week. And here you are, my unbidden companion. Once again you have dictated the course of my days, my hours, and my energy. I’ve had the best intentions. You see, it’s the first annual RA Blog week, hosted by a delightful fellow named Rick Phillips who shares his writing at RA Diabetes. I […]More
You may ask yourself…well, how did I get here? And you may ask yourself…how do I work this? As a rheumatology patient, you know when you arrived. If you’re lucky, you know where you are diagnostically. With so many cross-over symptoms and comorbidities, the specific diagnosis is often less important than: How do I […]More
Cue the dramatic music! DUN-DUN-DUHNNNN!!! Patients with autoimmune arthritis are living a drama straight out of a B-movie. Replete with villains, rivals for our attention, weapons, and passionate communication. We live for those moments in the sunset. The days we feel strong, and well. We have those cliffhanger moments, but have to be the heroine […]More
Chronic Life has all of the drama of reality TV. Inspired by my daughter’s Chronic Life live-tweet experiment for Health Central, I decided to have a little fun. And perhaps illustrate what it’s like for those who are both patient and caregiver. Just as anyone dealing with chronic illness, each day may take an unexpected […]More
I crept about the flowers and prairie grasses, seeking the beauty of morning light and sun angles, and had a realization. Not only is nature photography utterly meditative for me, it requires careful, measured movements, stretches and positions that I wouldn’t normally attempt. From this day forward, I shall practice the art of Yogagraphy. […]More